1/27/2024 0 Comments Social questions in genetics![]() A Reading and Discussion with George Estreich (70 mins, discussing Fables and Futures: Biotechnology, Disability, and the Stories We Tell Ourselves with Marsha Saxton, May 2019).Resisting Ableism: Disabled People and Human Gene Editing (13 mins, Alice Wong, Disability Visibility Project, November 2017).Disability Justice and Gene Editing: Exploring Multiple Perspectives (75 mins, featuring disability rights activists Anita Cameron and Mia Mingus, alongside sociologist and bioethicist Tom Shakespeare and feminist disability studies scholar Rosemarie Garland-Thomson, April 2017).Human Genome Editing from a Disability Rights Perspective Videos: Who should decide whether gene editing can be used to alter future generations? How should this decision be made?.In what ways might heritable genome editing affect inequality?.What are some of the ethical concerns about changing the genes of future generations?.What is the difference between somatic and heritable (or germline) gene editing and why is it important?.Altered Inheritance: CRISPR and the Ethics of Human Genome Editing, Françoise Baylis.For a review of this special issue: ' Perspectives' on Heritable Human Genome Editing, Pete Shanks, Biopolitical Times.CRISPR's Twisted Tales: Clarifying Misconceptions about Heritable Genome Editing, Marcy Darnovsky and Katie Hasson, Perspectives in Biology and Medicine (Special Issue on CRISPR), Jan 2020.Designer DNA Isn’t Just for ‘Designer Babies’, Katie Hasson, Zócalo Public Square.Gene-edited babies: no one has the moral warrant to go it alone, Katie Hasson and Marcy Darnovsky, The Guardian.Infographic: 5 Reasons to Say No to Genetically Modified Humans, Center for Genetics and Society.What is Human Gene Editing?, Center for Genetics and Society. ![]() Audio: Scientist's Claim of Genetically-Edited Babies Renews Ethics Concerns (52 mintues, KQED Forum featuring Marcy Darnovsky, Fyodor Urnov, and Alex Marson, November 2018).Video: Future of Genetics-Should We Create Superhumans? (90 minutes, Doha Debates featuring Katie Hasson, Jamie Metzl, and Julian Savulescu, March 2020).Video: Use Gene Editing to Treat Patients, Not Design Babies (12 minutes, Marcy Darnovsky at TedX Laguna Blanca School, January 2020).Heritable Human Genome Editing: Intro to Ethical and Social Implications.Guided lesson using TedEd platform (self-paced online lesson, educators can customize for use with their students): Human Genome Editing: Intro to Ethical and Social Implications Governing Human Genome Editing: Who Decides and How? (coming soon!).Human Genome Editing as a Social Justice and Human Rights Issue (coming soon!).Human Genome Editing from a Disability Rights Perspective.Human Genome Editing: Intro to Ethical and Social Implications.If you have feedback, of if you would like to see something specific, email us at Modules: We will be adding new modules to this list, so be sure to check back. Looking for resources to bring discussions of human genome editing into your classroom? Check out the themed teaching modules below, each containing suggestions for videos, readings (at a range of levels with most available for free), and discussion questions that explore the ethical and social implications of human gene editing from a social justice and human rights perspective.
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